“My Albinism Does Not Define Me” – Sibonginkosi’s Story of Confidence and Advocacy

At just 21 years old, Sibonginkosi Moyo has transformed her pain into purpose, becoming a confident advocacy champion for persons with albinism in Bulawayo. Growing up as an orphan raised by her grandmother, Sibonginkosi lived a lonely life shaped by stigma and discrimination. She recalls being called hurtful names and excluded by other children who were told she would “contaminate” them because of her albinism.

After the passing of her grandmother, Sibonginkosi moved in with her aunt, who later joined a Parent-to-Parent Support Group facilitated by ZPHCA. Through disability rights and positive parenting trainings, her aunt’s understanding of disability began to change. This support eventually connected Sibonginkosi to advocacy and leadership training opportunities for youth with disabilities.

Today, Sibonginkosi describes herself as confident, informed, and empowered. She is actively involved in advocating for the rights of persons with albinism and mobilising sunscreen lotions from local companies to support children living with albinism. She also conducts monthly awareness talks at her local church to promote understanding, acceptance, and inclusion within communities.

Her leadership continues to grow, with recognition from different stakeholders in Bulawayo and participation in national advocacy platforms for youth with disabilities.

Sibonginkosi’s story is a powerful reminder that inclusion, support, and opportunity can help young people with disabilities reclaim their voice, build confidence, and become changemakers in their communities.